Jazzie Ford, Founder | Brain Health Advocate | Speaker | Community Educator on Influential Women
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Influential Woman · Nonprofit

Jazzie Ford

Founder | Brain Health Advocate | Speaker | Community Educator, LaLa Speaks Foundation

Saint Louis, MO 63108

1Article published
2Awards received

Certifications · Degrees · Memberships

Member American Society of Black Neurosurgeons

Her Story

About Jazzie

Jazzie Ford is a Founder, Brain Health Advocate, Speaker, and Community Educator dedicated to advancing brain health awareness, health equity, and life-saving education. As the Founder and President of LaLa Speaks Foundation, she leads community-centered initiatives that help individuals and families recognize the warning signs of brain aneurysms, access critical resources, and engage in conversations that can save lives.

The Foundation was established in 2024 following the sudden passing of Jazzie’s daughter, Jacqueline “LaLa” Rhone, from a ruptured brain aneurysm. What began as a mother's response to unimaginable loss has evolved into a growing awareness movement grounded in one truth: Silence is deadly. Awareness saves lives.


Under Jazzie’s leadership, LaLa Speaks Foundation delivers culturally responsive brain health education through survivor-centered storytelling, community engagement, strategic partnerships, and public awareness campaigns. Its flagship awareness experience, Silent Sounds, Loud Impact, brings life-saving education into schools, workplaces, faith communities, and public spaces, transforming conversations into action and awareness into measurable impact.


Since its launch, the Foundation has reached more than 2,000 individuals, supported over 700 families, and built partnerships with medical, nonprofit, and community leaders to strengthen health literacy and close critical awareness gaps. The organization holds the Candid Platinum Seal of Transparency and has received a Missouri State Proclamation recognizing September as Brain Aneurysm Awareness Month.


Drawing on her background in nonprofit grant writing and development, Jazzie combines lived experience with strategic leadership to build sustainable partnerships, expand community education, and advance public awareness efforts. She works alongside healthcare professionals, medical advisors, institutions, and community leaders to ensure brain health education remains grounded in science, equity, and compassion.


Today, Jazzie uses her voice as an advocate, educator, and speaker to elevate brain health conversations beyond awareness months and into everyday life. Her mission is simple but urgent: to ensure that no family experiences preventable loss due to a lack of information.

Her Interview

Ten minutes with Jazzie

01What do you attribute your success to?

I attribute my success to turning pain into purpose, staying obedient to the mission, and building with strategy. After losing my daughter, Jacqueline “LaLa” Rhone, in May 2024, I made a commitment that her life would continue to speak through awareness, education, advocacy, and action. That commitment became LaLa Speaks Foundation.


What began as a response to personal loss has grown into a brain health awareness movement supported by community engagement, public education, strategic partnerships, and survivor-centered storytelling. Our work has been strengthened by organizations including NAMI St. Louis, Regions Bank, Missouri Baptist Healthcare Foundation, Midland States Bank Foundation, The Lil Bit Foundation, ServMO Missouri, VOP News STL, the Alzheimer’s Association Greater Missouri Chapter, Affinia Healthcare, and Family Care Health Center.


A key part of our growth and public awareness efforts has been the leadership of Dr. Abdullah Hakoun, MD, our founding Medical Advisory Board Member. Dr. Hakoun has served as a trusted medical voice for our movement, helping educate the public, spark critical conversations about brain aneurysms and brain health, and elevate awareness as we lead into Brain Aneurysm Awareness Month. His expertise has helped bridge the gap between lived experience and medical education, strengthening our ability to reach communities with life-saving information.


Our advocacy efforts have also contributed to meaningful policy progress. We are proud to have supported awareness initiatives that helped advance a Missouri House Bill that was truly agreed to and passed, further elevating the importance of brain health awareness and education across the state.


We have earned the Candid Platinum Seal of Transparency, received a Missouri State Proclamation recognizing Brain Aneurysm Awareness Month, and expanded our visibility through media features including FOX 2 Now, The St. Louis American, and Studio STL.


My success is not measured only by recognition. It is measured by impact, consistency, and the ability to turn awareness into action. Every step forward is rooted in one mission: ensuring that no family experiences preventable loss due to a lack of information and that brain health becomes a priority in every community.


02What’s the best career advice you’ve ever received?

The best career advice I’ve ever received was to “get out of your own head.” Overthinking can delay purpose, and self-doubt can limit vision. I’ve learned that clarity comes through action.


When you move with intention instead of fear, opportunities begin to align. That mindset has helped me lead with confidence, make strategic decisions, and remain focused on impact rather than hesitation. Progress requires courage, discipline, and the willingness to keep moving before everything feels perfect.


03What advice would you give to young women entering your industry?

If you are entering the nonprofit or advocacy space, build community before you build applause. Passion may ignite a mission, but strategy sustains it. Learn how funding works. Understand how to measure impact. Develop partnerships with intention.


At the same time, do not underestimate the power of your lived experience. Your story has value, but discipline gives it direction. I did not begin with every answer, but I committed to learning quickly, building structure, and leading with purpose. When your work is rooted in service and supported by strategy, recognition will follow.

04What are the biggest challenges or opportunities in your field right now?

One of the greatest challenges in brain health advocacy is sustained visibility. Brain aneurysms are life-threatening, yet public awareness of warning signs, prevention, and early intervention remains inconsistent. Education often peaks during awareness months, but year-round engagement is still limited.


There is also an equity gap. Underserved communities, particularly Black communities, often experience disparities in access to health education and timely care. The opportunity lies in transforming awareness from a moment into a movement. Brain health must become part of everyday conversations in schools, workplaces, faith communities, and public institutions.

05What values are most important to you in your work and personal life?

The values that guide both my work and personal life are awareness, integrity, equity, and service. Awareness is not simply recognition. It is empowerment. I believe families deserve access to life-saving information before a crisis occurs.


Equity means ensuring that prevention resources are not limited by geography, income, or visibility. Integrity means operating with transparency, accountability, and measurable impact. Service means building with intention so that no other family experiences preventable loss due to a lack of awareness. Service means building with intention so no other family experiences preventable loss due to a lack of information.


Turning grief into purpose shaped this mission, but discipline and community sustain it.


Her Content Hub

Articles by Jazzie

Workplace wellness programs have expanded, yet brain health awareness remains largely absent. Employers have a powerful opportunity to integrate life-saving education into everyday workplace culture.

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